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By NAN
31 July 2024 | 1:52 pm
The Nigeria Society of Hematology and Blood Transfusion (NSBHT), Hemophilia Care team and Novo Nordisk Hemophiliac Foundation, have called on the government to address hemophilia related deaths in Nigeria. They made the call on Wednesday in Abuja, when they paid courtesy visit to the Coordinating Minister of Health and Social Welfare, Prof. Ali Pate. Hemophilia,…
(FILES) In this file photo taken on March 08, 2019 a lab technician prepares to thawing blood bag before genetically modifying a patientís immune cells at a production laboratory unit of the Paoli-Calmettes Institute (IPC) overall cancer care centre in Marseille, southeastern France. – US scientists have succeeded in genetically editing the immune systems of three cancer patients using Crispr, without creating any side effects, a first for the tool which is revolutionizing biomedical research.The highly anticipated results from the first phase of a clinical trial were published in the journal Science on Thursday. (Photo by GERARD JULIEN / AFP) / ìA pixel correction has been made on this photo by GERARD JULIEN in the following manner: Patient’s name has been blured for legal reasons.
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The Nigeria Society of Hematology and Blood Transfusion (NSBHT), Hemophilia Care team and Novo Nordisk Hemophiliac Foundation, have called on the government to address hemophilia related deaths in Nigeria.
They made the call on Wednesday in Abuja, when they paid courtesy visit to the Coordinating Minister of Health and Social Welfare, Prof. Ali Pate.
Hemophilia, a genetic bleeding disorder, affects approximately 11,000 Nigerians, but only seven per cent has been diagnosed, leaving 93 per cent undiagnosed, and this has led to severe disability and early death.
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The team, led by Prof. Omolade Awodu, President, NSHBT, said that low priority, inadequate infrastructure and diagnostic equipment and high cost of replacement therapy were major challenges causing hemophilia deaths.
Awodu, therefore, appealed for improved diagnostic capacity, procurement of factor replacement therapy, reduced delays in clearing donated products that would ensure access to hemophilia diagnosis and treatment.
Responding, Pate acknowledged the need to strengthen hemophilia medicine and pledged government commitment to increasing concentrates and prophylaxis practice.
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He reiterated government commitment to prioritizing blood services in Nigeria, and called for a subsidy drive to alleviate constraints faced by vulnerable members of the public.
In the same vein, Prof. Saleh Yuguda, Director General, National Blood Service Commission (NBSC), expressed appreciation to the minister and the advocacy groups for their commitment towards addressing the plights of persons suffering from hemophilia.
Yuguda expressed commitment of the commission towards improving safe, quality blood services in Nigeria.
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